Kind Words

There are a lot of lovely people out there sharing their experiences on the Macmillan online community. Thank you all for your kind words and I wish everyone the best with their own battles. Its amazing how things bring people together.

This message from Carol was very encouraging and I thank you. Your situation sounds very similar to my own and I admire you for what you have come through.

Hi Tom and Emma

I also was diagnosed with a myxiod liposarcoma in August 2014. I underwent 5 weeks of RT in November at Dundee and December 2014 and followed with an operation to remove the 'lump' in February 2015 at Aberdeen.  The lump weighed in at a small melon - 2.5kgs. I had a 4 week stay in hospital to manage the wound and it took until August until it had healed sufficiently not to require dressings. I have limited movement in my knee (still not able to bend fully - about 10% at the moment). However saying all this I am still here so I'm not complaining.

I don't want to scare you as everyone is different and you are much younger (and probably much more fit than I am).  RT did work for me as it defined the margins of the tumour and did something to the mass which all helped when it came to the operation to remove it.  The specialist surgeons and nurses are fantastic so you will be well looked after.

In terms of support, Macmillan nurses are brilliant and can advise you about financial help if you need it.  I'm not sure if you have a Maggie's Centre near to you but they are fantastic as well (for both you and your wife).

If there is anything you want to ask about then feel free - I wish you well and good luck with all your scans & RT

Take care

Carol